Tuesday, August 13, 2019

F.U., aardvark; the eagle has landed

After a final walk to our "Denver" room ...

This room was the goal for every walk—you can see downtown, the
 entire Front Range and Pikes Peak! Don't complain about the quality
of the photo. I used my phone, and I'm not a photographer.

... and a lot of waiting ...

Balloons from little sister Alice

... we finally made it home.


(Thanks to our brother-in-law Ed for bringing Bella home while we were waiting to be discharged!)

And as has been the case for so many of these blog posts, Vic is sleeping soundly.


Couldn't be happier to be home. Couldn't ask for better family and friends who have supported us on this journey.


Monday, August 12, 2019

Postsurgery, days 10 and 11

TL;DR: WE'RE GOING HOME!!!

Full story:

Day 10 was more or less uneventful. Let's ignore it.

Day 11 started like any other: the ENT team descending upon us to do their work and leave, like ghosts. We chatted a little about the trach tube coming out, but they are so busy in the mornings that I don't really like to bother them. I knew we had to be in the hospital until at least 7 p.m., and I didn't think they'd discharge him in the evening, so I didn't need to take up a lot of their time.

That said, last night I'd started thinking about all the things we'd need when he went home: supplies, tube food, home healthcare, portable oxygen, etc. So when one of our favorite nurses showed up for shift this morning, I started quizzing her. She sprang into action and started calling people and requesting things and finding things out. Next thing I know, people are calling me to set things up, one of the doctors from the ENT team came up and took out the rest of his staples and his trach tube, respiratory was here to do an oxygen test, the speech and swallowing therapist was here giving him lessons—when it's time for discharge, things move at the speed of light.

(That said, on discharge day, things usually move at a glacial pace.)

So I'm just finishing up my workday, Vic is watching a movie, and we are counting down the hours.

Aardvarks, STAY AWAY!

Image by OpenClipart-Vectors from Pixabay.


Saturday, August 10, 2019

Postsurgery, days 8 and 9

TL;DR: Another wild couple of days, but back on the recovery train. Toot toot!

Full story:

When last we met, Vic was sleeping soundly and all was right with the world. (Well, right considering everything he's been through.)

Imagine my surprise—and dismay—when at 6:30 a.m. Friday I was rudely awakened by virtually every medical professional on the floor rushing into Vic's room. I gave him his white board, and he wrote "shook." "Shook?" one of the doctors said. "Are you shaken? Are you cold?" But I'm fluent in Vic, and I said, "His defibrillator went off." (It shocked him. That's pretty close to "shook.")

This made everyone even more panicky—everyone but us. We had more of a "been there, done that" attitude. I mean, his heart goes into ventricular tachycardia, his defibrillator goes off, and life goes on. The device did its job.

But since that's not their everyday life, I'm glad I was in the room, because I was able to answer all their questions about how often the defibrillator goes off, what kind of defibrillator it was, what his heart conditions are, what medications he takes for them, etc. Slowly but surely, they decided it was OK to leave him. I mean, they all had to go to their surgeries and whatnot. A couple of cardiologists came down, they did a bunch of heart tests (interrogating his device, giving him an echocardiogram, giving him another chest x-ray, doing an EKG), and I answered the same questions again. Later in the day, after talking to Vic's regular heart doctor, they decided to start him on a new heart drug.

While medically, the shock didn't have much of an effect (other than definitely delaying the discharge date), psychologically, it threw him into a tailspin. He basically spent the whole day in bed when he wasn't walking or going to the bathroom. I'm sure he wasn't feeling great from the pneumonia, but he also gets pretty melancholy when his defibrillator goes off.

So all in all, it was a pretty subdued day. He did get all four walks in, but the last one was so slow, and he was so weak. It made me so sad to see him so down in the dumps.

So imagine my surprise—and delight—when at 5:30 a.m. Saturday I was awakened when I saw the CNA taking him to the bathroom—and he was walking regularly. Not only that, but he walked from the bathroom to the bed without assistance as if he hadn't had pneumonia or surgery or a shock at all! It was early, so we went back to sleep, but at 6:30, when the ENT team was here, he just seemed better. More jokey. More ... Vic. He even did a little jig on a walk he took later in the day!

I don't know whether he was just feeling that much better from the pneumonia (I mean, if you're going to get pneumonia, do it in the hospital where they can give you massive amounts of powerful antibiotics so you can get over it quickly) or whether he just decided to put on his big girl panties and deal, but it really was like night and day.

I would have liked to hang out with him as he had this wonderful day, but it was my home day—check the house, make sure it didn't burn down, stuff like that. And guess what I found when I went to look at the garden?


A cucumber. A whole one!!! We planted 70 gazillion seeds, so getting a whole cucumber out of it is pretty darn special. (Note: I did see a whole bunch more little ones, so it looks like I'm going to be eating a lot of cucumbers in the coming weeks.)

Anyway, I got back to the hospital in the afternoon, and Vic and I had a very nice evening together. We even snuggled on the couch after his last walk of the day.

Next steps: Get that last drain out of his neck (he got the first one out this morning), finish up his antibiotics, and spend three days on the new heart drug. That puts us at 7 p.m. Monday, so a Tuesday discharge date—while not necessarily likely—is not out of the question.

You know, if he doesn't get attacked by an aardvark first.

Thursday, August 8, 2019

Postsurgery, the rest of day 5, day 6 and day 7

TL;DR: Lots of ups and downs the past few days. Currently trending up.

Full story:

It has been a real roller coaster over here for the past three days.

After my last post, Dr. Goddard came up to see Vic (Tuesday morning). She was very happy with his progress and said it was time to cap his trach tube, meaning he would be breathing on his own instead of through the tube—and he would be able to speak (even though he was not allowed to speak). HUGE milestone. She said that if everything kept progressing as it had been, then on Wednesday they would remove the vacuum dressing on his wrist, on Thursday they would remove the drains on his arm and neck, and he could go home by the "end of the week." (She didn't elaborate on whether "end of the week" meant Friday or sometime over the weekend, but in talking to some other staff, it sounded like Monday would be more likely than any other time.) She even said she was planning to take the trach tube out before he went home, which would be a miracle. Dr. Song said Vic might have that thing for weeks or months. You wouldn't think anything could top that but then this happened:

Rocky the therapy dog — Vic said it was the best part of his day.

On Wednesday, so many wonderful things happened! First, the ENT team took off the vacuum dressing—which was attached to a machine that we had to lug around wherever Vic went—and the drain in his arm. For the first time since surgery day, Vic was not attached to anything. The freedom was exhilarating.

Next, Vic graduated from yellow socks to brown socks.


Brown socks mean that you can walk around the hospital without a hospital staff member, and no one will stop you and give you a ticket. (I'm pretty sure that's what they said.) More freedom!

And yet ... Vic was tired that day. He no longer had a spring in his step—it had more of a dog-days-of-summer feel to it. Around 4 p.m., he was getting a bed bath, and CNA Erin took his temperature. It was a little high—in the 99s. She finished the bath and his temperature was a little lower, but a little while later, Nurse Rachel came in to take his temperature, and it was in the 102s. His blood pressure was even worse. From time to time in the ICU, it had climbed as high as 188 over whatever (it was the 188 that was alarming, so I didn't pay attention to the lower number). I mentioned this to Rachel, and she said, "Uh, yeah, this is beyond that." That's when the medical staff went into "medical staff mode." Rachel started making phone calls and got Dr. Talmege (I think of him as Dr. Goddard's right-hand man—he's at nearly all the rounds), who was in surgery. He scrubbed out and came right upstairs. Rachel took 70 gazillion vials of blood to do cultures and blood tests and whatnot to find out what was wrong. She gave him some medication to lower his blood pressure and hung some fluids and a broad spectrum antibiotic. She stayed an hour past her shift time to make sure nothing fell off the radar. A fellow came in to take a chest X-ray. They took a urine sample. The theory was that he had contracted an infection.

It was all pretty scary, and Vic kind of thought he was circling the drain. But, as is often the case with Vic, he wasn't. The fluids helped a lot, and his blood pressure and temperature both came down. He felt pretty crappy all night, but it definitely wasn't as crappy as before.

The ENTs came up for morning rounds and said whatever was going on wasn't in the blood and was probably in the lungs. The respiratory therapist said she'd heard pneumonia was a likely suspect, so they were treating that. I still haven't heard a formal diagnosis, but I'll ask the ENTs in the morning.

Around 9:30 a.m., Vic woke up and had to go to the bathroom. So I went over and disconnected him from his IV and leg pumper thingies (it's a medical term—look it up), and he got up. BEEP! BEEP! BEEP! Oops. They turned on his bed alarm. The charge nurse came running—apparently they've had a few falls lately and are really trying to avoid it. What I didn't realize was that they had "downgraded" him to need assistance again because he was connected to the IV and such. The morning was marked by miscommunication and frustration between me and the nursing staff. I'll spare you the gory details, but let's say I was just shy of Shirley MacLaine in Terms of Endearment, and it wasn't my finest moment. 😐

Fortunately, by the afternoon, Vic was feeling much better than yesterday, and he kept getting better all day. He took four walks, all fairly springy. He sat in the chair twice (more tiring than you might think) and sat up in bed for awhile. As is often the case when I am doing the blog, he is sleeping soundly.

I had thought all of this would really delay his discharge, but the night nurse said they were still planning on removing the trach tube Friday or Saturday, so we're still moving forward!

We've had quite the ride the past few days. Hoping the next few days will be a bit brighter!

Tuesday, August 6, 2019

Postsurgery, days 3, 4 and a little bit of 5

TL;DR: Vic has moved out of the ICU and onto a "regular" floor. He also got his old trach tube replaced with a new trach tube that allows him to speak. (Although he is not supposed to, so don't everyone be calling here at once. 😉)

Full story:

Since last we met, Dr. Goddard (the surgeon who created his new tongue) came by to see him early Sunday morning during ENT rounds. That was an exciting appearance! She said, "You can't ask for it to look much better." She should know! She ordered them to increase his tube food (did I mention that they'd started his tube food?), and she wrote an order to move him out of the ICU.

Moving out of the ICU takes a super long time—they have to wait for a bed to become available—so we stayed in the ICU all day Sunday and Monday.

Monday, Nurse Kate told us the ENT team had ordered a new, smaller trach tube, and the next think you know, the respiratory therapist brought up a bunch of supplies—including a cuffless trach tube. Kate and the RT didn't know when they were going to put it in, but now it was ready when ENT was. Kate was kind enough to tell tell us a lot about trach tubes.

(Any errors in this description are mine.) The trach tube sits low on his neck, below the vocal cords. The tube he had in on Monday was cuffed.

My finger is pointing to the "cuff"—can you see it?
It's kind of like a balloon.
This cuff inflates and presses against the windpipe, which blocks the airway and keeps the vocal cords from working.

A cuffless trach does not have that "balloon" and thus allows speech. You just have to put your finger over the hole.

Going from a cuffed trach to a smaller, cuffless trach is a huge step.

It looked like we weren't going to get a bed Monday, so after a nice walk around the ICU ...


...we went to bed. I wasn't looking forward to another night in the ICU—so loud, bed so uncomfortable, so many interruptions for Vic (I sleep through most of them)—but the quality of his care there was unquestionably high, so that far outweighs any inconvenience.

It would have been nice to move during the day or even in the evening. But sure enough, 5 a.m. Tuesday, Nurse Kyle comes in and says, "GET OUT" (he might have been a little nicer than that), and by 6 a.m. we were on "the floor."

At 6:30, the ENT team came in for rounds. They did their usual—look at everything, do a Doppler (like a tiny ultrasound to check for blood flow), check all the wounds. But today, they also put in the new trach tube. The doctor put his finger over the hole and said, "Say your name," and Vic said "Vic"! So exciting!

He is now sleeping soundly, and I'm about to take a cat nap before I start my workday.

Lots of great stuff going on down here in Aurora, folks!

Monday, August 5, 2019

He speaks! (with a white board) -vl

Editor's note: Vic is up and sitting in a chair and asked for his white board. He sat over there writing and writing and writing, and then he called me over and showed me this:


In case you can't quite see it, it says (with minor edits for clarity):

  • 4 days in ICU: ICU people are awesome
  • Supposed to move to "not dead yet" floor today
  • Worst part: trach tube
  • It makes an annoying noise, and it's sore
  • It sometimes sounds like Jumanji drums
  • Wifey perfect
That last bit is the real reason I included the picture, so you would all know I didn't make that up. Plus the white board is what qualifies this as a -vl post. In his own words!


Saturday, August 3, 2019

Postsurgery, day 2 (I guess we've established this as a subject line)

Yesterday was a great day. Everyone who checked on Vic said he looked fantastic and he was recovering splendidly. Isabelle from Dr. Song's office said "You're the best of anyone I've every seen on Day 1 post-op." The occupational therapist, Emily, couldn't believe he'd already been up and sitting in the chair. It's very encouraging about the rest of his recovery. His sister Alice spent the afternoon here, and his sister Patty came for a nice visit after work. He spent the evening resting and watching ... you guessed it ... a Rockies game.

Today his assignments were to try to sit in the chair three times for as long as possible, to walk to the bathroom instead of using the bedside commode, and to try standing at the counter for 2 minutes (as if he were shaving or washing his face).

I actually didn't spend most of the day with him today—it was my designated chore day—but by the time I got back, he had been on two walks (for a total of six laps around the ICU) and had sat in the chair twice. (The night nurse will have him sit in the chair again tonight.) Not sure if he'd done any standing, but I am uncharacteristically going to let it go. 😉 He has also started the dreaded tube food (if you were around for the last round of cancer, you know that tube food was his nemesis), and so far, so good. Whew!

He is still doing "better than average" (according to another doctor from Dr. Song's office). They do not expect people to be up and walking around at this point postsurgery.



An anesthesiologist from the Northern Colorado UCHealth also stopped by today and said she thought he was doing really well. His tongue is much less swollen than she's seen in other patients she's worked on. Then she gave me a T-shirt from a Weird Al concert she attended recently. Those Northern Colorado doctors are really into patient satisfaction!

Full disclosure: The anesthesiologist is also my niece.
Normally, Vic's second day after surgery is the worst day. The drugs from the surgery are wearing off, so he's in a lot of pain; he's super uncomfortable in the hospital bed and he's bored out of his mind. That hasn't been the case today—which is a good sign!

He's resting comfortably now (OK, he's sound asleep), and when he wakes up, we'll turn on ... you guessed it ... the Rockies game.

Probably no update tomorrow. Not a lot goes on in a hospital on the weekend, and there's no plan to move him out of the ICU. Also, I'm starting back to work on Monday (on call, so I probably won't work full time, and from the hospital, so I don't have to get out of my flip flops), so that will also curtail the updates, but I'll try to post every couple of days after work. If you don't get an update, assume everything is smooth sailing!

Friday, August 2, 2019

Postsurgery, day 1 (in which a clever title eludes me)

Good morning!

TL;DR: Everything went well in the evening, overnight and in the morning. Many doctors, nurses, students and others have been in and out—they all say he’s doing great. Perfusion (blood flow) in the tongue is great (probably the most important outcome of the surgery besides getting all the cancer out), all the wounds are doing what they should do, and he is sitting up as I type this. His mood is pretty good. Communication continues to frustrate him, but being able to get out of bed and move around will have a huge positive effect on his emotional well-being.
"Good morning, everybody!"

Full story:

He was kinda sleepy most of the night, but then at 10 p.m., BOING! Eyes wide open. This is usually about the time he really wakes up at home, and then he stays up until 2 a.m. or so. Fortunately, although he was wide awake for about a half-hour, he fell asleep rather quickly.

The nurse came in every hour to check on him—and stayed for a really long time each time. They are very thorough here, and that gives me a measure of comfort. When the night nurse (Tristan) came in at 6:30, he said Vic had done very well overnight, waking up when Tristan came in and then falling right back to sleep. It’s probably the most sleep he’s gotten in a month.

He’s been through two sets of rounds this morning, and neither of them was like Grey’s Anatomy. On the first set of rounds at 6:30, a swarm of locusts (I mean, doctors) descended, picked over him—each looking at a specific thing. One was looking at the tongue, one at the wrist, one at the thigh, one at the neck, etc. I heard them talking to each other and saying everything went well yesterday and things were looking great this morning. One of them—I think it was Dr. Gonzalez from Dr. Song’s office—asked if we had any questions. We didn’t. And as quickly as they came, they were gone. There were no introductions, no pleasantries. Just business. To be clear—I do not care whether they are friendly. They have a job to do, and they do it well.

The second set of rounds at 9 a.m. was what I would consider a more traditional rounds. A doctor, a bunch of nurses, and students. They did an extremely thorough review of his medical history, then did a systems review, then did a medication review—every single thing he was taking and why. They know everythingabout him! Then they all came in, and the doctor looked at all his wounds while the students looked on. For those of you keeping score, his platelets are 166. Now that surgery is done, the platelets aren’t as much of an issue—although they did say yesterday that they would be working with hematology to get guidance on the pesky platelets problem. In the end, they said his was an “easy, straightforward case,” and they expect him to be in the ICU for 24–72 hours.

Our current nurse is Emily. She couldn’t be a nicer, more professional person. She has been checking his perfusion—making sure the graft is taking hold. It is—his perfusion is great. (“Great” is a word I’m hearing a lot from these people. Such a relief.) She just took out his catheter and his A-line (no, not the train—it’s something they put in his ankle to check his blood pressure) and moved out of bed and into a chair. Nothing will improve his mood more than being able to get out of bed.


His communication frustration continues, but even that has improved overnight. Although it is still hard to understand him (he is moving his mouth and trying to speak, and apparently this is OK because no one says “DON’T DO THAT!!!”), he gets enough out that when he starts writing something, you can put it together pretty quickly. The biggest problem is that he tries to say one word and expects you to put together his entire thought process, and when you don’t understand, he gets superfrustrated. One time when this happened this morning, he just gave up and wrote “Winter is coming.” Ha! But I am hopeful that this will improve quite rapidly in the next few days.

Finally, a note for all you mother hens: Yes, I had dinner. Yes, I got a decent amount of sleep. Yes, I will eat today. Yes, I am taking care of myself. How could I not, with all of your voices in my ear?

My man is BACK!

Sorry—this was going to be my last post last night, and then my computer decided to hate me, and I was too tired to do a restart.

This is how the rest of the surgery day went:

The surgery was done around 5 last night, but it took three hours to get to see him. I'll spare you the details—let’s just say there were some miscommunications all around.

When we finally got in to the ICU, he was awake and alert, and he wanted his pen and paper right away. He drew a bunch of hearts with initials in them, indicating all the people he loved. He tried drawing a bunch of other things, which we couldn’t decipher—but that's Vic. Anybody can tell. He wanted to show

Speaking of showing, the first thing he asked me to do was take pictures of him—ever the photographer. He looks a little like Frankenstein’s monster, but all of these wounds will heal.

He has been super frustrated by not being able to speak, he hate hate HATES being dependent on people to do things for him ("This was my biggest fear," he wrote), he is apologizing for being a pain in the ass, and he already thinks recovery is taking too long.

We're trying to remind him that all of this is temporary. So far, he is having none of it. And it’s only going to get worse as his frustration increases along with his pain level.

And yet.

He can’t speak, but his personality is coming through loud and clear. He may have lost half of his tongue and a bunch of his lymph nodes, but he hasn’t lost his sense of humor. He has already figured out how to use the TV remote. Sure, there will be some changes—the new normal, as I mentioned in one of my other posts—but underneath, he’s still Mailman Vic, Victor Arlove, Boo, Veeeeeec, Uncle Vic, Gunc, Dad, Pop, brother, friend. And that will never change.

Vic's Bitmoji will have to do until he is more ... photogenic.

Thursday, August 1, 2019

Surgery day, SURGERY COMPLETE

8:23 a.m. And so it has begun. Vic went back to the surgery suite at 8:07. Interestingly, they originally said 10 hours, and then this morning Dr. Song said 8 hours, but then Dr. Goddard said 13 hours. So … yeah, I don’t know. They’ll call throughout the day. Watch this space for more!

8:28 a.m. OK, I just got this video from Roxie, my friend Jason's dog, and everyone needs to see it. Turn the sound on and be prepared to laugh until you cry (because you are laughing so hard).


10:14 a.m. Just got a call from the nurse. Surgery started around 9:30. I would have thought it would have started closer to 8:07, but what do I know? FYI, the 8-, 10-, 13-hour estimates were all "door-to-door," so we don't have to restart the timing clock. the 8, 10 or 13 hours started at 8:07. :-)

11:33: No real update, but I'm getting more of these talking animal videos, so I can't help but add them here:

Jasper

Porter

And apparently, you should never, NEVER leave your phone unattended around your dog, or he might make you a talking pet.

Porter's mom (my cousin Kim)

12:26: Dr. Song has finished his surgery and came to give me the "halftime" report.

TL;DR: Cancer removal is done; the margins are negative (meaning: no more cancer). Reconstruction surgery is starting. Expected finish time: 5 p.m. For those of you who have been mothering me, I am now going to go have lunch.

Full halftime report:

  • He decided to just do a full-on hemiglossectomy (removal of half the tongue) rather than taking a bit at a time and checking the margins, taking a bit more if needed and checking the margins, taking a bit more if needed and checking the margins. He made this decision because follow-up radiation really wasn't an option, so he really wanted to get all of the cancer. He then sent the tissue to pathology, and the margins are negative. Repeat: The margins are negative. That means he got all the cancer. YIPPEE!
  • He saved as much of the back of the tongue as possible—but Vic will need some swallowing therapy.
  • He took lymph nodes on the right and a little on the left, but with the scar tissue from his previous radiation, doing anything more would have been difficult. Since there was no indication of any cancer in the lymph nodes, he feels he got as much as he needed.
  • They did put in a trach tube. Look it up—it's not pleasant. And although we knew it was coming, Vic won't like it.
  • There is a tiny bit of nerve damage to his lip, so he may have an asymmetrical smile. You know he will milk that as if he only had just the one kidney.
  • He was having a lot of pain from his feeding tube procedure on Tuesday, but Dr. Song said it looked healthy. The pain might have come from ... you guessed it, the scar tissue from Vic's previous cancer experience.
Although we were hoping for less than a hemiglossectomy, nothing here was unexpected, Dr. Song finished early and said everything went well and Vic was doing great, and THE MARGINS ARE NEGATIVE, in case you missed that above. He expects the whole thing to be done by 5 p.m.

A few minutes after Dr. Song finished his halftime report, the nurse called from the OR to let me know everything was going fine and they were moving forward. (They're supposed to call every two hours, which is a nice benefit.)

Here's another talking dog from my (step)sister Kay to carry you over until the next update.


3:36: The nurse called from the OR to let me know everything was still going fine. On my way to the bathroom, I ran into the director of anesthesia, who has been doing Vic's anesthesia all day. She said he was doing great—and in particular, she said "I can tell he's strong." Vic is so strong that he radiates strength when he is under sedation. Not a surprise to anyone who knows him, right?

In the meantime, some of you mothering types have asked if I'm all alone in the big, scary waiting room. No, I am not. I am with my sisters. Please pay particular attention to our shirts, which we got specifically for today. I hope the next update is "surgery complete."



5:37 p.m. Dr. Goddard just came out of the OR with the final surgical update!

TL;DR: Everything went well (Dr. Goddard: "I couldn't have asked it to go better"), Vic is in the ICU and responsive, and we are in the waiting room waiting to be told we can see him.

Full postop report:
  • Everything went well. Dr. Goddard was able to do her Plan A and didn't have to alter her course for any reason whatsoever.
  • Vic is awake and responsive (he does things he is asked to do, like open his mouth—I wonder how long it will be before he will do things that I ask him to do), but loopy—one of the lesser-known dwarves—and sleepy.
  • He has a vacuum dressing on his arm, plus a drain.
  • He has two drains in his neck.
    • I said, "Ew, that's a lot of drains," and Dr. Goddard said, "Actually, that's fewer than normal." Once again proving that Vic recovers strong!
  • He has lots of sutures, bandages, staples, etc.
  • Says Dr. Goddard: I couldn't have asked for it to go better.
  • The waiting room crew has moved from the surgical waiting room to the ICU waiting room. We should be able to see Vic in an hour or so. Yippee!
I may send one more update tonight—but don't wait up for it.

Thanks for all those jokes, memes, texts, videos, comments on the blog, comments on Facebook, thoughts, prayers, healing energy, light and love. THEY WORKED!

T minus 7 hours 😬

Greetings!

So here we are, counting down the hours until we can stop being scared and anxious and nervous and start down that long road to recovery. I'll take that road any day.

I will keep a running blog post throughout the day as things happen (rather than creating a new blog post every time the nurse calls and says he's still in surgery, which she—or he, some of our favorite nurses have been men!—is supposed to do every hour).  So if you find yourself wondering how things are going, come on back to the blog!

I've had a lot of people ask if it's OK to call or  text or email or send owls to me, and my answer is "OF COURSE." When I'm not crocheting or eating gobs of chocolate, I will be obsessively checking my phone and computer, and nothing will fill my tank faster than heartfelt messages; funny memes; pictures of your kids, your animals, or your kids with your animals; videos you think are hilarious; Bitmojis; or just a smiley face to let me know you're thinking of me.

That said, to paraphrase what we used to say to beloved foster dog Cupcake, "You can't be thinking of me all the time. Sometimes you gotta do your own stuff." I know you're working, or taking care of kids, or just having your own life and maybe even your own problems. So if you don't reach out, don't worry. I know I'll pass through your thoughts tomorrow, and that will be enough for me. 💖

Let me finish as I often do, with some pictures and some mushy stuff.

First, here's a picture of Vic (and Bella) with a new blanket:


This one was commissioned by my sister from her friend Jeannie Peppel. I can tell you that Jeannie must be a really good friend, because I don't think I would make a blanket for someone's brother-in-law. It's super warm, and it complements the quilt he got last week. In fact, as I am writing this blog post, he is firmly ensconced under both of these blankets. (He tends to get cold at night.)

Next, a few pictures from a little family pool party we had on Monday:

This is after I did something that I thought was hilarious—which, of course,
it was—that Vic thought was ... let's just say less hilarious.
Me, Vic and my mom. I actually don't think we have any other
pictures of the three of us, because Vic is usually behind the camera.

I love how we're all laughing in this picture. This is, in front, my great
niece Madi and my great nephew Will. And in back, me, my great niece
Fin, my niece Margeaux, and (of course) Vic.

And what I love about this picture is that we got the photographer of all
the other pictures in with us—my nephew (Margeaux's husband) Xan. My
only regret in these pictures? My sister was there, and we didn't get her in
any of them. Whoops! Well, she did take this picture, so maybe that counts?

Margeaux made two delicious bread puddings for Vic (he loves bread pudding), and we had fun just sitting around watching the girls jump in the pool.

Then today, I got some new pictures of my Wisconsin niece Layla and nephew Harrison:



I feel like Nick and Margeaux were just this age—I don't see how they have families of their own.

Finally, tonight we had a family pizza party with Vic's family. I say "Vic's family," but they are my family too. I don't know how people survive with in-laws who treat them like out-laws. (An old family joke.) Sorry—no pictures of tonight's party, and I don't have any good pictures on my phone. You'll just have to imagine how much fun we had.

I really do have the best family—my birth family and my extended family of in-laws, in-law-in-laws (my sister's in-laws), and steps. They make me who I am—strong, resilient, loved. They allow me to be my goofy, picky self with no judgment (well, maybe a little judgment, but only an eye roll here and there). They take care of me and they care for me. They are my Drogon—fiercely protective, fiercely loyal.

But the really mushy part today has to go to Vic. He calls himself Wonder Whiner—and to be fair, he has done his share of whining (deservedly so)—but in reality, he has been more like SuperStoicMan. He continued to take care of himself and Bella and our critters (birds, skunks, raccoons) and the garden and the house long after I would have used cancer as an excuse to get out of everything I didn't want to do. He even washed my car the other day. He really doesn't like being "sick," and he's had a pretty rough road these past few years. Many people might give up, but not Vic. He told me the other day that he thinks he has more life in him yet, and that's why he's going through this horrible, massive surgery with the super long recovery. Well, that, and he doesn't want to look like a sissy. 😉

So I leave you today with this rare candid photo of me and my husband of almost 31 years, the strong, kind, loving and absolutely hilarious Victor R. Love.